Tuesday, April 10, 2012


There's a good reason that I didn't blog yesterday.  I couldn't!  With so much activity centered around going HOME, every second of my day is accounted for, with no time for "extras."  I realized this last night as I was typing at 11 pm while dozing off.  

The good news through our even more so hectic schedule is that we are getting our DUCKS in line to G-O.  Can I get an AMEN?!  Word on the street is that Friday may be "the day" of discharge.  We pray so!  Today though we have an instruction on learning to use her pulse oximeter which will tell us what her oxygen saturation is when we are at home.  This is important because it's a great indication as to her "state of the union."  Since it measures the oxygen in her bloodstream, it tells us if her circulation is getting wonky and if so, it tells us that her BT Shunt in her heart is not working correctly.  

We've also been playing "nurse."  I should have an honorary nursing degree after our almost 10 week crash course here!  I jokingly say that I've been home schooled each day by the best of the best.  True.  Daddy Patrick and I have been administering meds through Charlotte's Gtube. Remember that anything which would go through her mouth, now goes through her Gtube.  So that means, her feedings (milk) and daily medicines, multi-vitamin.  Patrick and I will also learn how to use the pump which connects to her Gtube and will administer continuous feedings over the course of the next few weeks, as the incision heals.  Once it has and her gut has had a chance to transition to feeding, then she will have an outpatient procedure to take out the tube from her stomach and replace it with a "Mickey Button."  A Mickey Button looks like the cap to a beach ball.  Through it, we will feed Char Char her milk feedings via a syringe.  Easy peasy.

We are HAPPY to add to our already long list of to-do's.  HAPPY because our SWEET CHARLOTTE is coming home soon.  Quack.  


  1. woohoo!! way to go, Charlotte, Mommy, Daddy and little P!! You're almost there:) THANK YOU JESUS! as always, our prayers continue for you all!

  2. ABSOLUTELY AEWSOME !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

  3. What a wonderful way to be busy! I am so happy she is doing so well and you can finally be together at HOME! God is Good!

  4. Sweet music to our ears!
    The Lord is good...mighty good!
    Trusting Him,
    David & Candy

  5. Hallelujah! Praise God! So excited that there's a DC date on the horizon & you'll have your sweet angel home! All this medical stuff is VERY familiar to my family, so if you ever have questions...I'm here for you :) xoxo