Thursday, March 1, 2012

NEGATIVE NELLY

Seriously people...she's NEGATIVE AGAIN! I can't believe it. To help put this into perspective, when she was on ecmo, the team "scuffed" off (manually drained) fluid and was able to get large amounts like the 174 number she lost last night! I remember being told that they were scuffing off a lot the night before she came off ecmo to help get her down to fighting weight, if you will. It's absolutely incredible that she is doing this on her own now. She's shrinking right before our eyes. The past 2 mornings - today especially - have been incredible to walk in and see my old Char Char staring back at me. I might remind you that she has been on diuretics on and off this whole time, to no avail.

She will have a chest ultrasound tomorrow to determine if the fluid has decreased around her lungs. PRAY PRAY PRAY that it has. If not, she will need the pig tail catheters. And if once drained, she continues to have fluid build up in her chest, then the thoracic duct is the culprit with surgery being the fix. We pray that once drained, her chest stays so! Additionally, it will give her lungs a better chance not having to fight against that fluid build up when she is extubated again. All of this is married together.

I continue to struggle with just how to thank all of you for your constant prayers for my darling daughter. Truly, we are forever grateful to each and every person who has lifted her up in prayer. There aren't words to express our deep gratitude, as it's the most precious gift you could ever give us. From the bottom of my heart...thank you. God is shining not just through Charlotte but also in each of your hearts.

CHARLOTTE STATS:
Weight: 5 lbs 7 oz
Diaper Size: Preemie size Small (the diaper is folded in half and the tabs overlap when fastened!)



6 comments:

  1. it made me beyond happy to read this post! again, it is amazing to see and hear about God's work on a daily basis. i know He is always there, around all of us, everyday, but reading your posts and hearing about charlotte's progress has just been such a great reminder of that. and no thanks needed by the way, it is our privlage to pray for you sweet char char. keep up the good work baby girl:)

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  2. WE ARE MORE THAN HAPPY TO BE YOUR PRAYER WARRIORS, AND TO HEAR AND SEE
    THE RESULTS IS EVEN MORE AMAZING. MAY GOD CONTINUE TO BLESS YOUR FAMILY.

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  3. Go Charlotte! So glad to hear of her progress, continued prayers!!

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  4. Praying for you Charlotte!
    Trusting Jesus,
    David & Candy

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  5. In regards on not knowing how to thank people for their prayers, I came
    across this:

    FRIENDS ARE QUITE ANGELS WHO LIFT US TO OUR FEET
    WHEN OUR WINGS HAVE TROUBLE REMEMBERING HOW TO FLY.
    MAY GOD BLESS YOU

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  6. Woo-Hoo!! I just love reading all of this wonderful news each morning! Go Charlotte, Go!!! xoxo

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