The mood in Charlotte's room is easy, joyful and thankful. We are so grateful to our Gracious God for His gift of Charlotte's progress and, of course, for peace. As Patrick and I closed our eyes the night before last, he told me that he couldn't take another day like what we had just experienced for the second time. I couldn't agree more and yet I realize that God knows what we can and can't handle and through even our darkest pain, there is light. Just take a look at what good has come about thanks to my Char Char.
There are so many on their knees thanking God for her precious life as they plead for her to be healed. And those same people on their knees hug their own babies a little longer at night. They let the 'little things' slide as they remember that life is more than to-do lists and bedtimes. Thanks to Charlotte, people have been drawn closer to God and those who have fallen away from Him, have instead turned to Him in need... and in thanksgiving and praise. Thanks to your emails, texts and letters, we know of so many who are STORMING HEAVEN petitioning God for Charlotte. We thank you for the incredible gift which you continue to give us as you pray for our Sweet Baby and for that we are forever grateful.
In the midst of our worst pain, we have experienced incredible joy. Charlotte is our gift and is such an inspiration, not to mention, quite the puppeteer! (Daddy has a lot to look forward when his little treasure turns 16, doesn't he?!) Even Dr. Mendeloff has said that our wonder baby is running the show. That's fine with me because I know who she gets her orders from.
Sometimes I catch myself thinking how incredible it is that my 13 day old baby has already gone through 2 open heart surgeries, as well as having 3 others, including being on ecmo! She is the epitome of strength and God's love and is a true inspiration. We have a long road ahead of us, but she seems to be much happier after having Tuesday's surgery. The way I describe it is that she prefers the bag phone vs the iPhone. The BT Shunt is much more her style as we continue to be in awe of her stats. She continues to wow us with stability...and even some progress. However, our main goal is resting.
Possibly, her chest may be closed as early as Friday, although again that depends on her. It may be that it is closed in stages to allow for her body to handle it successfully. She's blazing her own trail, isn't she? She's also had a day of milk feeds via a NG tube in her nose which goes directly to her belly. It's going in at a rate of 1 ml per hour(!) and hardly enough to do anything more than coat her tummy, but it makes Mommy happy that she's getting liquid gold. Too, her lactic acid has hit an all-time record low! Her brain bleeds are unchanged, meaning that the one the left side is actually resolving and the other is unchanged. Because they never worsened, she is not at risk for any neurological damage. PRAISE HIM. She has even begun to tee-tee a bit more. Her pain is being managed but as a mother, it is one of my biggest concerns. I pray that it is minimal. Her swelling has increased a bit more than yesterday and she hasn't been able to shed it. Pray that the excess fluid finds a new home soon so my daughter can begin true healing with chest closure and comfort.
We will continue to update you with her PROGRESS. Thank you for the great comfort which each of you bring us through prayer.